Yes, I know it has been awhile. Every time I sit down I can't seem to get the words to come out the way I want them. But, I decided I was going to take a stab at it with some random thoughts today.
My husband bought a motorcycle yesterday. It is a 30 year old motorcycle -- just like one he had thirty years ago. I call it his "late life crisis". He turns 65 in a few weeks so that is his birthday present to himself. I just want to be sure his life insurance is paid up.
I had a neurologist appointment this week. It's so frustrating when there is nothing he can really do to help you. "stay on your meds and see you in six months" is what I hear. He also told me that I am a poster child for the disease -- I don't want to be a poster child for anything!
My friend Josh that I have written about is doing great despite all the surgeries and everything he has been through. I actually got to visit with him for awhile yesterday and he is extremely upbeat and positive. He knows how bad it could have been. He has quite a few more surgeries to go through and will be in the hospital for quite awhile yet, but it was so good to see him.
About six months ago I opened a Facebook account. I'm still kind of getting the hang of it and don't have too many friends. However, it has been fun to re-connect with people I've lost track of and make new friends as well. I have met several people that live nearby that have Early On-Set Alzheimer's and that has been good for me. I hope to keep adding friends and getting better at "Facebooking".
I'm going to try to be better about posting....but I know I have said that before.
Have you seen the book "Brain Longevity" by Dr.Dharma Singh Khalsa. It is and very relevant to your situation.
ReplyDeleteHey Kris,
ReplyDeleteI too have been kinda lax in blogging lately.
I still owe 2 installments on the summary you sent me about the "Voices of Alzheimer's" Town Hall meetings from last year.
I couldn't really improve on what was already there, since I am still in the "infabcy" of the disease, so I just added my own reactions to the questions.
Thanks again for sending it to me.
Bill C.